The Big Questions
After three years of treatment, I suspect many people are a bit lost with Hugo’s illness and treatment. Here are some of the questions I have been asked and a few others that I thought people might want answers to. …
What happens next?
During our last appointment at GOSH, our oncology nurse specialist answered the all important question – ‘what happens when treatment ends?’ I’ve asked many questions relating to this along the way. Always hesitantly, not wanting to look too far ahead,…
Day in the Life – Bloods
Once a week a community nurse comes to our house to take some blood from Hugo via his bumpy. This blood is then sent to the lab and later that day, or the following day, we get a phone call…
The Long Version
Over the last few weeks we have had a couple of little blips. Small bumps along the road of our new normal. We have these every so often. I don’t tend to write about them, because everything turns out to…
Bring it on 2018!
So, we have reached 2018, the year Hugo will finish treatment. It feels significant. The countdown can well and truly begin. I remember, just after Hugo was diagnosed, reading that treatment for his type of leukaemia would last just over…
A Mini Holiday
Our first mini holiday. 3 nights in the Cotswolds. Our first chance since Hugo’s diagnosis nearly 9 months ago to get away. An opportunity to forget everything else that is going on, to relax, have fun and be together. Most…