• Hugo’s Story

    The New Normal

    We are slowly setting into life back at home, our new normal.  Things feel incredibly different and the 15 days we were away for don’t seem a fair reflection of the journey we have been on. It’s strange being out…

  • Hugo’s Story

    Teardrops

    Since diagnosis, 7 days ago, I have had to hold Hugo as he cried while numerous medical staff tried time and time again to insert fresh cannulas into his small hands.  Telling him it will be okay, when it was…