• Hugo’s Story

    What is maintenance all about?

    We have now reached the end of our first 12 week cycle of the maintenance phase.  We are slowly adjusting to another new normal, one that will last a long time. So what is maintenance?  As I understand it, during…

  • Hugo’s Story

    A Badly Decorated Christmas Tree

    We are currently 17 days into phase 4, delayed intensification.  During that time Hugo has had 5 scheduled hospital trips and 9 different drugs administered in a variety of ways. Yesterday saw his third and final doses of strawberry juice…