Day in the Life – Medication
I often get asked if Hugo is still on chemotherapy. Has he finished, or is he due another cycle? Treatment for blood cancers can differ from other cancer treatment plans. It is often long, in some cases life long, and…
What is maintenance all about?
We have now reached the end of our first 12 week cycle of the maintenance phase. We are slowly adjusting to another new normal, one that will last a long time. So what is maintenance? As I understand it, during…
So this is Christmas
It was a close call, the week leading up to Christmas had seen 4 hospital visits, only one of which had been scheduled, but we made it through Christmas with no hospital stays, yay! Hugo’s wiggly managed to work for…
Phase 4 Part 2
So we are now in the second part of phase 4. Along with the cyclophosphamide, Friday’s visit to GOSH saw us restarting the dreaded mecaptopurine. Another 2 weeks of the yucky, nil by mouth chemo that Hugo really dislikes. In…
Raising the Bar
Today sees the end of phase 3. Another one down, go Hugo! I gave Hugo his last dose of mecaptopurine earlier this week. He will have to resume taking it in a few weeks, but for the moment it’s off…
We’re going to the Zoo!
Today marks the 2 month anniversary of Hugo’s diagnosis. It feels like we have come a huge distance in that time. The immediate shock has been replaced with new emotions, equally as difficult, but perhaps less intense. We have found…
Grandad on Duty
Yesterday saw us heading up to GOSH for another dose of methotrexate administered by lumber puncture. This was our fourth trip since being discharged and we have been starting to feel like pros with our routine. We know what time…
