Delayed Intensification
After a nice little treatment break Hugo has now started phase 4, delayed intensification. Having had a break from drugs and hospitals, I have been feeling quite apprehensive about starting again. We enjoyed having a little certainty in our lives…
Roar!
Hugo and I are currently at GOSH for his last high dose of methotrexate. We are on Lion ward this time, rather than Giraffe ward as usual. The nurses on Lion ward are of course lovely too, but I am…
Interim Maintenance
Over the past couple of weeks Hugo has finished phase 2 of his treatment and started phase 3, interim maintenance. No treatment break, this time we were straight into it. We were given the rest of Hugo’s treatment plan, all…
Grandad on Duty
Yesterday saw us heading up to GOSH for another dose of methotrexate administered by lumber puncture. This was our fourth trip since being discharged and we have been starting to feel like pros with our routine. We know what time…
Flying High
So another big day has arrived. We were heading up to GOSH where they would give us the results of Hugo’s MRD test. The result that would tell us if he’d achieved remission. Whether he would be classed as low…
Phase 1 – Induction
It has been 4 days since Hugo was diagnosed. We spent the first night at our local hospital and were then transferred by ambulance to Great Ormond Street Hospital (GOSH). The last 4 days have been a whirlwind, an intense…