A Mini Break
We have just experienced our first unscheduled hospital stay. I suppose this is what we have been waiting for ever since we came home. I suspect we are lucky to have made it this long. Infections are a very serious…
Interim Maintenance
Over the past couple of weeks Hugo has finished phase 2 of his treatment and started phase 3, interim maintenance. No treatment break, this time we were straight into it. We were given the rest of Hugo’s treatment plan, all…
We’re going to the Zoo!
Today marks the 2 month anniversary of Hugo’s diagnosis. It feels like we have come a huge distance in that time. The immediate shock has been replaced with new emotions, equally as difficult, but perhaps less intense. We have found…
Grandad on Duty
Yesterday saw us heading up to GOSH for another dose of methotrexate administered by lumber puncture. This was our fourth trip since being discharged and we have been starting to feel like pros with our routine. We know what time…
Flying High
So another big day has arrived. We were heading up to GOSH where they would give us the results of Hugo’s MRD test. The result that would tell us if he’d achieved remission. Whether he would be classed as low…
Minimal Residual Disease
Today saw another trip to GOSH for Hugo, myself, and Richard, and another sleepover for Henry. Hugo was having a dose of chemotherapy and a bone marrow aspirate. These are not new for Hugo but today was different, today was…
A Week in the Life
This past week has seen us back at GOSH, this time Hugo was an outpatient on Safari ward. He was in for another bone marrow aspirate and some vincristine administered through wiggly. Hugo was on the morning theatre list which…
Home Sweet Home
Our stay at GOSH has lasted 2 weeks, but finally, 15 days post diagnosis and 11 days into treatment, we are allowed home. We prepare to leave armed with a large bag of medication, with numerous leaflets and booklets. We…
Phase 1 – Induction
It has been 4 days since Hugo was diagnosed. We spent the first night at our local hospital and were then transferred by ambulance to Great Ormond Street Hospital (GOSH). The last 4 days have been a whirlwind, an intense…