What happens next?
During our last appointment at GOSH, our oncology nurse specialist answered the all important question – ‘what happens when treatment ends?’ I’ve asked many questions relating to this along the way. Always hesitantly, not wanting to look too far ahead,…
Day in the Life – Hospitals
Hugo started the maintenance phase of his treatment plan in January 2016. It’s the final phase of treatment and is made up of 12 cycles, each of which are 12 weeks long. However, each 4 week block is the same…
What is maintenance all about?
We have now reached the end of our first 12 week cycle of the maintenance phase. We are slowly adjusting to another new normal, one that will last a long time. So what is maintenance? As I understand it, during…
Reaching Maintenance – Yay!
Today saw us back at GOSH for a second attempt at starting maintenance. Hugo’s rosy cheeks had gone and his bloods were up a little, so we were hopeful that this time would be more successful. It was good news,…
False Start
So today we set off to GOSH for the start of the maintenance phase. Hugo’s bloods were taken on Friday and they were still a little low, but we’d checked with GOSH and they were confident they would increase enough…
Phase 4 Part 2
So we are now in the second part of phase 4. Along with the cyclophosphamide, Friday’s visit to GOSH saw us restarting the dreaded mecaptopurine. Another 2 weeks of the yucky, nil by mouth chemo that Hugo really dislikes. In…
Delayed Intensification
After a nice little treatment break Hugo has now started phase 4, delayed intensification. Having had a break from drugs and hospitals, I have been feeling quite apprehensive about starting again. We enjoyed having a little certainty in our lives…
Roar!
Hugo and I are currently at GOSH for his last high dose of methotrexate. We are on Lion ward this time, rather than Giraffe ward as usual. The nurses on Lion ward are of course lovely too, but I am…
Wonderful Giraffes
Day 95 of Hugo’s treatment sees up back at GOSH for high dose methotrexate round 3. As usual we receive a warm welcome from the wonderful nurses on Giraffe ward. We have been on Giraffe ward for all of our…
Relishing Normal
We have been having a lovely normal week at home. We’ve had the car serviced, been to Henry’s parent’s evening, I even managed to get my hair done. This is excitement these days, getting to be normal. In a couple…
