What Hugo Did Next
On the 18 September 2018, after 3 years, 2 months and 5 days, Hugo finished his treatment for Acute Lymphoblastic Leukaemia. 6 weeks later he had his port-a-cath (bumpy) removed and rang the End of Treatment Bell at Great Ormond…
Happy and Sad Tears
Tomorrow Hugo will take part in his school sports day. It’s his second one, but his first since finishing treatment. This upcoming event has brought to head a mix of emotions that I have been feeling for a while. Firstly…
Finding the Balance
I started to write this blog post a few weeks ago. I was full of excitement and enthusiasm for the start of the new year. We’d been waiting a long time for this, for our first cancer free calendar year…
End of Treatment Bubble
It has now been three weeks since Hugo took his last dose of chemotherapy. So what does life on the other side look like? In many ways it doesn’t look very different to life on treatment. There has been medication…
Getting my Spark Back
In just a few days Hugo will finish his treatment. A thousand thoughts and feelings have been racing around in my head over the last few weeks. Many of them positive, but some feel negative and selfish. It’s difficult to…
What happens next?
During our last appointment at GOSH, our oncology nurse specialist answered the all important question – ‘what happens when treatment ends?’ I’ve asked many questions relating to this along the way. Always hesitantly, not wanting to look too far ahead,…
