The Long Version
Over the last few weeks we have had a couple of little blips. Small bumps along the road of our new normal. We have these every so often. I don’t tend to write about them, because everything turns out to…
Bring it on 2018!
So, we have reached 2018, the year Hugo will finish treatment. It feels significant. The countdown can well and truly begin. I remember, just after Hugo was diagnosed, reading that treatment for his type of leukaemia would last just over…
Things I Have Learnt
It has now been 2 years since Hugo was diagnosed with acute lymphoblastic leukaemia. 24 months of our strange, new, cancer filled life. The learning curve has been steep and I’m pretty sure it’s not done yet. Here are a…
Today I cried
Today I cried. Not a huge great sob fest, just a little tear, catching me unaware. I cry fairly easily. Sad books or films on the TV, even adverts have been known to set me off. However I don’t often…
Bumps in the Road
We are plodding along. What seemed so strange and scary at the beginning has somehow become normal. There is a new standard to measure by and everything is fine, by this new standard, good even. Until it isn’t. Until there…
Screw you Cancer
Last night I sat in my son’s bedroom and held him in my arms as he cried in pain. His hip hurt and he couldn’t find relief from it. I tried desperately to help. I rubbed his hip, wiped his…
A Constant Supply of Gingerbread Men
Since this journey began, I’ve found myself on occasions drifting into a kind of glazed daydream, pining for all the things we are missing out on since Hugo was diagnosed. I don’t want to feel sorry for myself, but sometimes…
Flying High
So another big day has arrived. We were heading up to GOSH where they would give us the results of Hugo’s MRD test. The result that would tell us if he’d achieved remission. Whether he would be classed as low…
