Things I Have Learnt
It has now been 2 years since Hugo was diagnosed with acute lymphoblastic leukaemia. 24 months of our strange, new, cancer filled life. The learning curve has been steep and I’m pretty sure it’s not done yet. Here are a…
Today I am Stopping
Once in a while, on rare occasions, things go just how you would like them to. All the pieces of the jigsaw fit together. An imagined ideal that seemed so out of reach becomes a reality. All too often…
Bumps in the Road
We are plodding along. What seemed so strange and scary at the beginning has somehow become normal. There is a new standard to measure by and everything is fine, by this new standard, good even. Until it isn’t. Until there…
Running – My New Best Friend
Well maybe not my best friend, that spot is already taken. But in recent months, running and I seem to have developed a bond, we have reached an understanding and an appreciation has grown. I have tried to take up running before.…
Lights, Camera, Action!
I have often wondered what it would be like to be famous, to be photographed and interviewed. That’s probably my over active imagination at work again, but I suspect I’m not alone in being curious. Is it exciting, nerve wracking or…
A Great Big Dose of Normality
Well it seems that summer is finally here. The children have broken up from school, the tube is like a sauna and everyone is excitedly talking about their upcoming holidays. The sunshine seems to give everyone a lift. People are…
Something Worth Celebrating
I hadn’t planned on writing a post about it. One year since our lives were turned upside down, 12 months since my amazing, beautiful, precious son was diagnosed with leukaemia. I didn’t want to give cancer the satisfaction of acknowledging…
You are not alone
I’ve been struggling. Not a huge amount, just a little bit, every once in a while. It shouldn’t be a surprise I suppose, it’s probably to be expected. My son has cancer, how could I not be finding things difficult?…
Screw you Cancer
Last night I sat in my son’s bedroom and held him in my arms as he cried in pain. His hip hurt and he couldn’t find relief from it. I tried desperately to help. I rubbed his hip, wiped his…
What is maintenance all about?
We have now reached the end of our first 12 week cycle of the maintenance phase. We are slowly adjusting to another new normal, one that will last a long time. So what is maintenance? As I understand it, during…