Day in the Life – Bloods
Once a week a community nurse comes to our house to take some blood from Hugo via his bumpy. This blood is then sent to the lab and later that day, or the following day, we get a phone call…
Day in the Life – Steroids
Hugo encounters many different side effects from both the leukaemia and the medication he takes for it, but on a day to day basis, steroids are definitely the cause of the most challenging (which is why they get a blog…
Broken Pieces
A couple of weeks ago I found myself at our local hospital. Not a particularly unusual occurrence given Hugo’s situation. However this time I wasn’t there for Hugo, I was there for me. I’d been to the doctors that morning…
My Other Child
A few months ago I posted a photo of Henry on Facebook. We were on a day out, just me and him. A treat day to spoil him a little, because it’s tough when you’re the sibling of a child…
The Long Version
Over the last few weeks we have had a couple of little blips. Small bumps along the road of our new normal. We have these every so often. I don’t tend to write about them, because everything turns out to…
Bring it on 2018!
So, we have reached 2018, the year Hugo will finish treatment. It feels significant. The countdown can well and truly begin. I remember, just after Hugo was diagnosed, reading that treatment for his type of leukaemia would last just over…
One Day Cancer, You Will Be a Dot
Today it has been 2 years, 4 months and 5 days since Hugo was diagnosed with acute lymphoblastic leukaemia. The significance of this day? He was 2 years, 4 months and 5 days old at the time of diagnosis.…
A Bumpy Road
A few months ago I wrote about a bump in the road. Hugo had broken his leg and there were questions over his bone density and muscle weakness. My head was spinning with all the ‘what ifs’ as we waited…
He is Here
So September has arrived, which means the start of both Childhood Cancer Awareness Month and Blood Cancer Awareness Month. A month where I try to raise awareness, to fundraise and share an insight into the world of childhood cancer. A…
What Would Hugo Say?
A few weeks ago the charity Bloodwise asked if Hugo and I would be the face of their Blood Cancer Awareness Month campaign. My first thought was to immediately say yes. To be able to share our story and raise…
