• Our Life

    Time To Be a Little Bolder

    I want to live more boldly, be a little braver. Hugo’s diagnosis changed me. I’m still the same person, I just have some extra layers now, layers that weren’t there before. The experience gave me a different perspective and a…

  • Hugo’s Story

    My Other Child

    A few months ago I posted a photo of Henry on Facebook. We were on a day out, just me and him. A treat day to spoil him a little, because it’s tough when you’re the sibling of a child…

  • Hugo’s Story

    Bumps in the Road

    We are plodding along. What seemed so strange and scary at the beginning has somehow become normal.  There is a new standard to measure by and everything is fine, by this new standard, good even.  Until it isn’t.  Until there…

  • Hugo’s Story

    Screw you Cancer

    Last night I sat in my son’s bedroom and held him in my arms as he cried in pain.  His hip hurt and he couldn’t find relief from it.  I tried desperately to help.  I rubbed his hip, wiped his…