Halfway
We have now passed the halfway point of treatment. Hugo is currently on month 20, with 18 more to go. We are on the downhill slope towards the end of treatment. That light at the end of the tunnel is…
Running – My New Best Friend
Well maybe not my best friend, that spot is already taken. But in recent months, running and I seem to have developed a bond, we have reached an understanding and an appreciation has grown. I have tried to take up running before.…
September is Coming
September is coming. Soon the children will be heading back to school and autumn will be arriving. It also means the start of Childhood Cancer Awareness Month, the colour for which is gold. Since Hugo was diagnosed with leukaemia a little over a year…
Lights, Camera, Action!
I have often wondered what it would be like to be famous, to be photographed and interviewed. That’s probably my over active imagination at work again, but I suspect I’m not alone in being curious. Is it exciting, nerve wracking or…
A Great Big Dose of Normality
Well it seems that summer is finally here. The children have broken up from school, the tube is like a sauna and everyone is excitedly talking about their upcoming holidays. The sunshine seems to give everyone a lift. People are…
Something Worth Celebrating
I hadn’t planned on writing a post about it. One year since our lives were turned upside down, 12 months since my amazing, beautiful, precious son was diagnosed with leukaemia. I didn’t want to give cancer the satisfaction of acknowledging…
You are not alone
I’ve been struggling. Not a huge amount, just a little bit, every once in a while. It shouldn’t be a surprise I suppose, it’s probably to be expected. My son has cancer, how could I not be finding things difficult?…
Screw you Cancer
Last night I sat in my son’s bedroom and held him in my arms as he cried in pain. His hip hurt and he couldn’t find relief from it. I tried desperately to help. I rubbed his hip, wiped his…
What is maintenance all about?
We have now reached the end of our first 12 week cycle of the maintenance phase. We are slowly adjusting to another new normal, one that will last a long time. So what is maintenance? As I understand it, during…
A Mini Holiday
Our first mini holiday. 3 nights in the Cotswolds. Our first chance since Hugo’s diagnosis nearly 9 months ago to get away. An opportunity to forget everything else that is going on, to relax, have fun and be together. Most…