Hugo’s Story
What Hugo Did Next
On the 18 September 2018, after 3 years, 2 months and 5 days, Hugo finished his treatment for Acute Lymphoblastic Leukaemia. 6 weeks later he had his port-a-cath (bumpy) removed and rang the End of Treatment Bell at Great Ormond…
Happy and Sad Tears
Tomorrow Hugo will take part in his school sports day. It’s his second one, but his first since finishing treatment. This upcoming event has brought to head a mix of emotions that I have been feeling for a while. Firstly…
Finding the Balance
I started to write this blog post a few weeks ago. I was full of excitement and enthusiasm for the start of the new year. We’d been waiting a long time for this, for our first cancer free calendar year…
End of Treatment Bubble
It has now been three weeks since Hugo took his last dose of chemotherapy. So what does life on the other side look like? In many ways it doesn’t look very different to life on treatment. There has been medication…
Getting my Spark Back
In just a few days Hugo will finish his treatment. A thousand thoughts and feelings have been racing around in my head over the last few weeks. Many of them positive, but some feel negative and selfish. It’s difficult to…
The Big Questions
After three years of treatment, I suspect many people are a bit lost with Hugo’s illness and treatment. Here are some of the questions I have been asked and a few others that I thought people might want answers to. …
Leaving Normality
A couple of months ago, on the way back from a hospital appointment, Hugo asked me what it felt like when I had my bumpy taken out. Bumpy is our name for Hugo’s port-a-cath/central line. The little device that sits…
Day in the Life – Side Effects
During the early phases of treatment Hugo suffered with many of the side effects synonymous with cancer. His hair fell out, he was sick, tired and pale. He lost weight, his light dimmed and he looked ill. Now, in this…
What happens next?
During our last appointment at GOSH, our oncology nurse specialist answered the all important question – ‘what happens when treatment ends?’ I’ve asked many questions relating to this along the way. Always hesitantly, not wanting to look too far ahead,…
Day in the Life – Medication
I often get asked if Hugo is still on chemotherapy. Has he finished, or is he due another cycle? Treatment for blood cancers can differ from other cancer treatment plans. It is often long, in some cases life long, and…
