Time To Be a Little Bolder
I want to live more boldly, be a little braver. Hugo’s diagnosis changed me. I’m still the same person, I just have some extra layers now, layers that weren’t there before. The experience gave me a different perspective and a…
A Grief Shared
It has now been over a month since my dad passed away from Covid-19. I lost my mum a few years ago, so I have a little experience of grief. I learnt that the grief process is different for everyone.…
Beginnings and Endings
The big day had arrived, my little brother was getting married! Hugo was well enough for me to feel comfortable leaving him, so I put on my frock, glammed myself up, then Henry, my gorgeous date for the day, and…
Minimal Residual Disease
Today saw another trip to GOSH for Hugo, myself, and Richard, and another sleepover for Henry. Hugo was having a dose of chemotherapy and a bone marrow aspirate. These are not new for Hugo but today was different, today was…
What If?
The weather has been warm and the boys had a great time out in the garden this weekend. Henry in the paddling pool and a still non-walking Hugo sitting in a garden chair playing with toys. Bubble fun in the…
Freedom!
Freedom! Well almost. Perhaps a small step towards freedom is a more accurate description. Today we have been allowed outside. After a blood transfusion yesterday, Hugo was taken off fluids so is no longer hooked up to a drip, there…
Phase 1 – Induction
It has been 4 days since Hugo was diagnosed. We spent the first night at our local hospital and were then transferred by ambulance to Great Ormond Street Hospital (GOSH). The last 4 days have been a whirlwind, an intense…
The Moment
This is not how I imagined it. Not that I’d given a great deal of thought to it you understand. But, I’m not alone am I? In letting my mind slip, my imagination take hold and to wonder ‘what if’?…
