September is Coming
September is coming. Soon the children will be heading back to school and autumn will be arriving. It also means the start of Childhood Cancer Awareness Month, the colour for which is gold. Since Hugo was diagnosed with leukaemia a little over a year…
Lights, Camera, Action!
I have often wondered what it would be like to be famous, to be photographed and interviewed. That’s probably my over active imagination at work again, but I suspect I’m not alone in being curious. Is it exciting, nerve wracking or…
A Great Big Dose of Normality
Well it seems that summer is finally here. The children have broken up from school, the tube is like a sauna and everyone is excitedly talking about their upcoming holidays. The sunshine seems to give everyone a lift. People are…
Something Worth Celebrating
I hadn’t planned on writing a post about it. One year since our lives were turned upside down, 12 months since my amazing, beautiful, precious son was diagnosed with leukaemia. I didn’t want to give cancer the satisfaction of acknowledging…
You are not alone
I’ve been struggling. Not a huge amount, just a little bit, every once in a while. It shouldn’t be a surprise I suppose, it’s probably to be expected. My son has cancer, how could I not be finding things difficult?…
Screw you Cancer
Last night I sat in my son’s bedroom and held him in my arms as he cried in pain. His hip hurt and he couldn’t find relief from it. I tried desperately to help. I rubbed his hip, wiped his…
What is maintenance all about?
We have now reached the end of our first 12 week cycle of the maintenance phase. We are slowly adjusting to another new normal, one that will last a long time. So what is maintenance? As I understand it, during…
A Mini Holiday
Our first mini holiday. 3 nights in the Cotswolds. Our first chance since Hugo’s diagnosis nearly 9 months ago to get away. An opportunity to forget everything else that is going on, to relax, have fun and be together. Most…
For my Mum
Dear Mum It has been two years since you passed away. I can hardly believe that so much time has gone by, that our lives have somehow managed to continue without you here. You have missed so much and time…
Reaching Maintenance – Yay!
Today saw us back at GOSH for a second attempt at starting maintenance. Hugo’s rosy cheeks had gone and his bloods were up a little, so we were hopeful that this time would be more successful. It was good news,…