A Bumpy Road
A few months ago I wrote about a bump in the road. Hugo had broken his leg and there were questions over his bone density and muscle weakness. My head was spinning with all the ‘what ifs’ as we waited…
He is Here
So September has arrived, which means the start of both Childhood Cancer Awareness Month and Blood Cancer Awareness Month. A month where I try to raise awareness, to fundraise and share an insight into the world of childhood cancer. A…
What Would Hugo Say?
A few weeks ago the charity Bloodwise asked if Hugo and I would be the face of their Blood Cancer Awareness Month campaign. My first thought was to immediately say yes. To be able to share our story and raise…
Things I Have Learnt
It has now been 2 years since Hugo was diagnosed with acute lymphoblastic leukaemia. 24 months of our strange, new, cancer filled life. The learning curve has been steep and I’m pretty sure it’s not done yet. Here are a…
Today I cried
Today I cried. Not a huge great sob fest, just a little tear, catching me unaware. I cry fairly easily. Sad books or films on the TV, even adverts have been known to set me off. However I don’t often…
Watching and Waiting
When Hugo started the maintenance phase of treatment 14 months ago, we were warned that there would be hospital admissions. That Hugo’s low immunity would make him susceptible to infections and that his inability to fight these infections would likely…
Today I am Stopping
Once in a while, on rare occasions, things go just how you would like them to. All the pieces of the jigsaw fit together. An imagined ideal that seemed so out of reach becomes a reality. All too often…
Bumps in the Road
We are plodding along. What seemed so strange and scary at the beginning has somehow become normal. There is a new standard to measure by and everything is fine, by this new standard, good even. Until it isn’t. Until there…
Halfway
We have now passed the halfway point of treatment. Hugo is currently on month 20, with 18 more to go. We are on the downhill slope towards the end of treatment. That light at the end of the tunnel is…
Running – My New Best Friend
Well maybe not my best friend, that spot is already taken. But in recent months, running and I seem to have developed a bond, we have reached an understanding and an appreciation has grown. I have tried to take up running before.…