All About Hugo!

With big brother Henry

* His favourite animal is the monkey and his favourite colour is red (both of which were the inspiration for our Virtual Dash medals).

Our Virtual Dash Medal designed by Hugo

His favourite TV programme is Paw Patrol and he has an impressive collection of Paw Patrol toys that he looks after very well and keeps nice and tidy.

* He is fairly quiet and shy and lacks confidence, especially with people he doesn’t know. Once he lets you in he is loving, fun and worth the effort it takes.  He is thoughtful, incredibly sweet-natured, kind and generous.

* He loves sparkly things and twinkling lights and one of his dreams is to go to Paris after being sent a postcard of Paris by night. It’s on the top of our ‘to do’ list when treatment finishes!

Sparkly Paris by night

At In The Night Garden Live – loving a sparkly light!

* He can be stubborn and is a pretty impressive sulker! He likes to do things in his own time and in his own way. He’s quietly determined and will keep trying even if something is hard. He is tougher, stronger and braver than he may first appear (and has shown this time and time again over the last couple of years).

* He is a mummy’s boy, has been since the day he was born. He gives the most amazing cuddles and showers me with a love that I do my best every day to deserve.

* His hair has always been a little bit crazy!

16 months old

It calmed down by about 2 years old. 

Rocking the bald look!

It has grown back thicker, slightly darker and crazier than ever!

Big and crazy hair!

* He loves to dance. Around the kitchen, in shops, wherever. Being in a wheelchair hasn’t changed this, he loves a good chair boogie too!

Having a boogie on holiday

* His cuddly bunny (imaginatively named Bunny) is his best friend. Hugo sleeps with him, asks for him if he is upset, and Bunny is never far from Hugo’s side. Bunny doesn’t leave the house though, unless we are going on holiday or to the hospital – although that has changed recently after Bunny was traumatised from an extended stay at GOSH after being left in the consultants office!

19 months old and 9 months pre diagnosis

* He has a cheeky side, knows how to wind up his big brother and has a great sense of humour. He brings smiles and fun to our lives and makes us laugh every day with his ‘Hugoisms’.