Getting my Spark Back
In just a few days Hugo will finish his treatment. A thousand thoughts and feelings have been racing around in my head over the last few weeks. Many of them positive, but some feel negative and selfish. It’s difficult to…
The Big Questions
After three years of treatment, I suspect many people are a bit lost with Hugo’s illness and treatment. Here are some of the questions I have been asked and a few others that I thought people might want answers to. …
Leaving Normality
A couple of months ago, on the way back from a hospital appointment, Hugo asked me what it felt like when I had my bumpy taken out. Bumpy is our name for Hugo’s port-a-cath/central line. The little device that sits…
Day in the Life – Side Effects
During the early phases of treatment Hugo suffered with many of the side effects synonymous with cancer. His hair fell out, he was sick, tired and pale. He lost weight, his light dimmed and he looked ill. Now, in this…
What happens next?
During our last appointment at GOSH, our oncology nurse specialist answered the all important question – ‘what happens when treatment ends?’ I’ve asked many questions relating to this along the way. Always hesitantly, not wanting to look too far ahead,…