So this is Christmas
It was a close call, the week leading up to Christmas had seen 4 hospital visits, only one of which had been scheduled, but we made it through Christmas with no hospital stays, yay! Hugo’s wiggly managed to work for…
Phase 4 Part 2
So we are now in the second part of phase 4. Along with the cyclophosphamide, Friday’s visit to GOSH saw us restarting the dreaded mecaptopurine. Another 2 weeks of the yucky, nil by mouth chemo that Hugo really dislikes. In…
He’s Back!
Hugo is back! After a week or so of being completely wiped out, he has turned a corner. Somehow he has summoned some energy and is seeming much more like his normal self again, minus the hair. It’s a huge…
Tough Days
We are now halfway through phase 4, delayed intensification. Hugo has finished the second week of steroids, which again saw disturbed nights with painful legs and tummy. He has been completely wiped out and has spent most of the last…
A New Altered World
Today was not a good day, today was pretty awful. Today Richard had to go into work early. This meant I was on my own with the boys, rushing around trying to get us all ready and out of the…
A Badly Decorated Christmas Tree
We are currently 17 days into phase 4, delayed intensification. During that time Hugo has had 5 scheduled hospital trips and 9 different drugs administered in a variety of ways. Yesterday saw his third and final doses of strawberry juice…